Malala Fund and Cochlear Foundation in Partnership

THE MALALA FUND AND COCHLEAR FOUNDATION IN PARTNERSHIP to raise awareness of need for early access to ear and hearing care and the importance of equal rights to education.

The world’s youngest Nobel Peace Prize laureate and co-founder of Malala Fund, Malala Yousafzai, called for societies and governments to prioritise hearing health across the life-course in a personal foreword for the World Health Organization’s first-ever World Report on Hearing, in March 2021.

According to the @WHO, 34 million children worldwide have disabling hearing loss. If children with hearing loss do not receive hearing healthcare and support early on, they often experience lower school performance, higher risk of dropping out of school, and less likelihood of accessing University. This problem is worse in many parts of the world where children — especially girls — already face significant barriers to education. Hearing loss does not have to be a barrier to life’s opportunities. @MalalaFund and Cochlear Foundation have partnered to raise awareness and help overcome barriers keeping millions of young people with hearing loss from accessing a quality education and early access to hearing healthcare and support.

CIICA supports this call for equal access to education and early hearing healthcare which is so important for us all. Watch and share this video as Malala tells her amazing story. It raises the self- confidence of children and young people with hearing loss and inspires them to achieve anything they set their minds to.

Malala Fund and Cochlear Foundation are inviting children and young people with hearing loss to share their stories of personal achievement as part of the ‘Achieve anything program.’ This new program will highlight and publicly recognise their real-world experiences of children and young people with hearing loss and promote their equal rights to an education and early access to hearing healthcare and support. Visit www.cochlearfoundation.org to learn more about the partnership and how to submit stories to the ‘Achieve anything program’.

Back

WHO launches Hearing Screening: Considerations for Implementation

The World report on hearing recommends that WHO Member States take urgent and evidence-based policy action to prevent, identify and rehabilitate hearing loss. Screening for hearing loss and ear diseases at specific time points forms an important part of this strategy.

HEARING screening: considerations for implementation builds on the recommendations made in the World report on hearing. It aims to provide Member States with technical guidance for establishing evidence-based programmes for hearing screening in different target age-groups and to facilitate early interventions for ear diseases and hearing loss in: 

  • newborns and infants
  • schoolchildren 
  • older people

Screening was identified as vital to our network members and the World Health Organisation launched this handbook on screening this week. Three more webinars will be available to share more information about each area. To register go here: Launch of HEARING screening: considerations for recommendations (who.int)

These are all vital issues for the CIICA network  wherever you are. WHO hope it inspires hearing screening programmes to facilitate early intervention to address hearing loss. 

Go to Hearing screening: considerations for implementation (who.int) to download the document which provides information and evidence to establish screening programmes. 

More information at www.ciicanet.org/resources.

Back

Anniversary of the International Consensus Statements!

The Anniversary of the publication of the International Consensus Statements on Adult Cochlear Implantation is marked by the publication of Landmark – 12months on. There has been an amazing amount of activity to share that has taken place globally – raising the issue of adult CI during what has been a challenging time globally. Read the fascinating and encouraging summary of the activity of which CIICA has been a part….ICP 12 months in review (flippingbook.com)

Back

UK annual CI update: 2020-2021 data now available!

Every year BCIG asks UK cochlear implant centre coordinators to share the number of new patients who have received cochlear implants, and the number of people with cochlear implants that they look after.  Thanks to all the centre coordinators for sharing their data. In the UK from 1-4-20 to 31-3-21, 848 new people received cochlear implants. Lower of course than our usual annual figure, but great to see that so many people did get to benefit from a CI, despite the pandemic. You can also see the figures over the years with the trends over time which is really helpful. See the full figures here:

https://www.bcig.org.uk/wp-content/uploads/2021/08/2-8-21-BCIG-CI-data.pdf

Back

Four summaries of the CI evidence from WHO World Report on Hearing now available

Cochlear implant is one of the most successful of all neural prostheses developed to date. (WHO, World Report on Hearing, P100)

We now have four summaries for you to download and share:

Translations of the synopsis available in Dutch, Turkish and Russian. Download: Dutch, Turkish, Russian

The Evidence Briefing available in Russian. Download: Russian

Coming soon in German, Spanish, Italian and French. Do offer to translate one in another language – go to info@ciicanet.org

Back

HLAA’s Externally-Led Patient Focused Drug Development Meeting

The Hearing Loss Association of America (HLAA) received permission from the U.S. Food & Drug Administration (FDA) to hold an Externally-Led Patient-Focused Drug Development Meeting for People and Families Living with Sensorineural Hearing Loss (https://www.hearingloss.org/hlaa-pfdd/) on Tuesday, May 25, 2021.

This was a real opportunity to ensure patient engagement has a role in shaping future hearing loss treatments and creating a deeper understanding by FDA of the impact of hearing loss on individuals and their quality of life. The voice of those with hearing loss was certainly heard loud and clear!

Most of the comments that were collected before the meeting, during the live meeting and up until June 25 will be included in a “Voice of the Patient” report to be published in the fall. The comments that are not included in the report will be shared in a separate, online PDF. Thank you to all of you whose support made this meeting possible.

The May 25 HLAA interactive virtual meeting had 411 unique views. There were 712 people who pre-registered for the meeting.

Back

CIICA LIVE in MAY: The World Report on Hearing and CI Advocacy

CIICA LIVE in MAY: Our first session of CIICA LIVE with 145 registrants from 30 countries shared information from the World Report on Hearing and its evidence for CI Advocacy. See our speakers ready to go! Sue Archbold, Qais Khan, Leo De Raeve, Catherine Birman, Brian Lamb, Beatrice Cusmai, Paige Stringer and Eddie Mukaaya. See the programme in our Events page. It also launched our new resources – summaries to help advocacy groups by providing the evidence in an accessible format. Available to download from our Resources section; have a look!

Back

New evaluation concludes not enough evidence to recommend Hearing Screening for adults in the US.

A new report on hearing screening for non-sympotic adults over 50 with age related hearing loss by the US Preventative Task Force has concluded that they cannot recommend hearing screening for this group. This was on the grounds that there is insufficient evidence “to assess the balance of benefits and harms of screening for hearing loss in older adults.”  The report did note that  “Hearing loss can adversely affect an individual’s quality of life and ability to function independently and has been associated with increased risk of falls, hospitalizations, social isolation, and cognitive decline.” The Task Force also acknowledged NICE evidence from the UK – which shows that hearing aids are effective and an individual’s needs, not thresholds alone, should form the basis of provision.

The report can be accessed at https://www.uspreventiveservicestaskforce.org/uspstf/recommendation/hearing-loss-in-older-adults-screening 

The friends of Congress which brings together nonprofit hearing health organizations in the U.S. commented on report;

In March 2021, the U.S. Preventive Services Task Force issued recommendations regarding hearing screening for older adults over the age of 50. While we understand the gaps in research identified by the USPSTF, given the significance of hearing health to overall health and the susceptibility of older adults to hearing loss, we believe additional research to support a universal hearing screening recommendation for older adults is needed and should be prioritized. Thus, we are seeking Congress to convey the importance of building the research base for older adult hearing screening.” 

CIICA notes that the World Hearing Report does recommend hearing screening for older adults which they see as cost-effective for adults above 50 years of age with a possible return of 1.62 International dollars for every 1 dollar invested in hearing screening in high-income countries. (WHO, World Hearing Report page 91-92) 

Back