Insights from Delegates: CI Advocacy in Action in Brussels 2024
Nothing about Us Without Us ……..a reality at this first CI Advocacy in Action Conference, Brussels
100 delegates from 27 countries – including 38 CI users had their voices heard, sharing their advocacy successes and challenges – with passion! Thanks to all our speakers – see their presentations as pdfs in resources. Thanks to Shelly Chadha and Carolina Der from WHO, to Sara Robinelli, Prof of Health Communication, and Frances Gallimore – CI user and writer from Netherlands – who talked movingly of the stigma of deafness.
There are times in life when you feel you witness to something extraordinary. This first CIICA conference, led by those with cochlear implants is one of those times.
Global, inclusive, friendly, fun!
Loved everything ! – dynamic, diverse, perfect!
CHECK OUT GRAEME CLARK’S MESSAGE AND DELEGATES’ REFLECTION VIDEO
Graeme Clark’s inspiring message for CIICA’s Global Conference: CI Advocacy in Action in Brussels!
Insights from CIICA’s First Global Conference: Delegates Speak Out on CI Advocacy in Action!
How to be part of this vibrant community and spread the word in my country
I feel inspired and energised – going back home full of hope and inspiration
Message from Ariane Laplante Lévesque for CIICA Conference 2024: CI Advocacy in Action
Thank you from mothers of CI kids from Armenia, Georgia, Ukraine, Kyrgistan
25th February 2022: Our First Anniversary and International CI day! See videos from our network on the impact of the pandemic.
We are proud to be celebrating our first Anniversary on CI International Day, 25 February 2022 with so many messages and videos from around the world. See below!
With our 77 organizations and 350 individuals we can make a noise about action for CI – increased access, and lifelong services. You can access here our media messages, our shared evidence base, logo , banner, messages to share and use.
CIICA’s first year hasn’t been an easy one for us all with a global pandemic. what have we learnt and what has it taught us to take forward? How can we ensure that Ear and Hearing Care and CI in particular are funded and services provided globally? We have the evidence – of effectiveness and cost-effectiveness – see here all the messages on these global videos- by users, families and service providers determined to move CI services forward in spite of the challenges.
Let’s not lose this opportunity to improve CI provision!
Video messages from our global network: sharing our experiences, what have we learned?
Helen Cullington “Happy first anniversary CIICA and thank you so much for everything that you do to raise awareness of and improve access to cochlear implants around the world, we’re so proud to be working with you.”
Patricia Faletty “We must think about the position of hearing loss in those who have had COVID”
Anita Grover “It’s been wonderful to see CIICA grow over the last year and to see the impact it’s had in such a short space of time.”
Catherine Birman “So many people have told me they have been able to hear over zoom and the phone, thanks to their cochlear implants”
Peter Helmout “I would like to tell you something about the impact of the Pandemic in the Netherlands… it had its pros and cons”
Katalin Gal “The pandemic taught me how important creativity and resilience is in both therapy and advocacy”
Eddie Mukaaya (no sound)
Paige Stringer “I have been so grateful for my cochlear implant in the pandemic”
Robert Mandara “The pandemic forced me to confront and overcome my fears of video calls.”
Lidia Best “One of the most important problems is communication – lack of availability of people’s faces and the possibility to lipread has been incredibly hard.”
Barbara Kelley “The working together has helped us inform the work we do here in the US.”
Qais Khan “Everyone around you is wearing a mask – you have no idea who is talking..”
Anita Grover “We’ve also learned a lot from this experience; we’ve found new ways of working, new ways of communicating…”
Vahishtai Daboo “The impact on mental health of families has been tremendous especially in India.”
Jenny Perold “Although the pandemic has been such a tough time in so many ways it has taught us about the wonder of online access”
Leo De Raeve “I would like to tell you about the experience of COVID on the education of deaf children.”
Darja Pajk “Perhaps more people will understand the problems of people with hearing loss”
Bowen Tang “Reset, Relearn and Regroup”
Ingeborg Dhooge “People are resilient, are creative and look for solutions”
Neelam Vaid “With the right attitude no challenge is insurmountable”