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Nordic Declaration on Adult Cochlear Implantation

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On World Hearing Day, 2022 we are delighted to share the Nordic Declaration on Adult Cochlear implantation : IMPROVING ACCESS TO COCHLEAR IMPLANTS FOR ADULTS.

Only one in ten have access to life-changing cochlear implantation.

Patient organisations in all Nordic countries want to change this and have therefore joined forces to formulate a declaration to be used to politicians and other key stakeholders.

 This declaration focuses on adults over 18 years with severe to profound hearing loss, of over 65dB7:

  • All adults with severe to profound hearing loss should be eligible to be evaluated for CI’s.
  • Professionals who see those with Hearing Loss must have up to date information and guidelines for when and how to refer patients to CI teams.
  • For adults eligible for CI’s, access to assessment and treatment should be provided without any unnecessary delay.
  • Established indications and guidelines should be matched with adequate resources and funding.
  • Adults with severe to profound hearing loss should get access to optimal hearing care in both ears, including bilateral implants.
  • CI is a lifelong treatment.
    • For the severe to profound hearing-impaired every technology improvement counts. Hence regularly updating to the latest technology is required, with a minimum replacement every five years.
    • Consumables such as batteries, coils, remote controls, swimming kit for CIs, activation of telecoil, BT/streamers and microphone filters should be funded
  • As a long-term goal adult screening should be introduced routinely from the age of 50 years as per the WHO recommendations for adult screening: (WHO, Hearing Screening handbook, 2021).

By accepting and committing to the declaration, the Nordic region will be set to lead the world in providing comprehensive, sensible and fair cochlear implant provision for adults. Cochlear implants are life-changing sound investments, restoring good hearing to most severely and profoundly deaf adults who strive to hear, comments Robert Mandara, VP EURO-CIU, Finland

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CIICA   News   Patient/user Voice

HLAA’s Externally-Led Patient Focused Drug Development Meeting: Voice of the Patient Report now available

The Hearing Loss Association of America (HLAA) received permission from the U.S. Food & Drug Administration (FDA) to hold an Externally-Led Patient-Focused Drug Development Meeting for People and Families Living with Sensorineural Hearing Loss (https://www.hearingloss.org/hlaa-pfdd/) on Tuesday, May 25, 2021.

This was a real opportunity to ensure patient engagement has a role in shaping future hearing loss treatments and creating a deeper understanding by FDA of the impact of hearing loss on individuals and their quality of life. The voice of those with hearing loss was certainly heard loud and clear!

We are delighted to share that the “Voice of the Patient” report is now available online. You will also find the comments we received prior to, during and after the meeting online.

The May 25 HLAA interactive virtual meeting had 411 unique views. There were 712 people who pre-registered for the meeting.

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