CIICA Live comes to YouTube! The World Report on Hearing and Cochlear Implant Advocacy. The evidence.

Here are the presentations from our exciting webinar! Down load our briefings at

Leo De Raeve’s introduction about CIICA and our speakers.


Paige Stringer talks about the World Report on Hearing and it’s importance for us all.


Sue Archbold shares the evidence about CI from the report to use in advocacy work download the briefing in resources.


Beatrice Cusmai challenges us to use social media and the press “we must make our wave of information that let’s people hear the sounds of life”


Eddie Mukaaya inspired us. He managed to get the government in Uganda to waive the taxes on hearing technologies!


Cathy Birman challenges us to choose one of the advocacy ideas and get active!

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HLAA’s Externally-Led Patient Focused Drug Development Meeting

The Hearing Loss Association of America (HLAA) received permission from the U.S. Food & Drug Administration (FDA) to hold an Externally-Led Patient-Focused Drug Development Meeting for People and Families Living with Sensorineural Hearing Loss (https://www.hearingloss.org/hlaa-pfdd/) on Tuesday, May 25, 2021.

This was a real opportunity to ensure patient engagement has a role in shaping future hearing loss treatments and creating a deeper understanding by FDA of the impact of hearing loss on individuals and their quality of life. The voice of those with hearing loss was certainly heard loud and clear!

Most of the comments that were collected before the meeting, during the live meeting and up until June 25 will be included in a “Voice of the Patient” report to be published in the fall. The comments that are not included in the report will be shared in a separate, online PDF. Thank you to all of you whose support made this meeting possible.

The May 25 HLAA interactive virtual meeting had 411 unique views. There were 712 people who pre-registered for the meeting.

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EURO-CIU welcomes new Apple Memoji depicting a Cochlear Implant user

Apple has announced the new memoji’s will be on additional features coming later this year to better represent users with oxygen tubes, cochlear implants, and a soft helmet for headwear. EURO-CIU has welcomed the move which the group has lobbied for since 2018.

The initative was part of a wider annoncecment by Apple including the launch a new service, called SignTime which enables customers to communicate with AppleCare and Retail Customer Care by using American Sign Language (ASL) in the US, British Sign Language (BSL) in the UK, or French Sign Language (LSF) in France, in their web browsers.

Apple are also adding support for new bi-directional hearing aids. The microphones in these new hearing aids enable those who are deaf or hard of hearing to have hands-free phone and FaceTime conversations.

They are also introducing support for recognizing audiograms to Headphone Accommodations. Users can quickly customize their audio with their latest hearing test results imported from a paper or PDF audiogram. Headphone Accommodations amplify soft sounds and adjust certain frequencies to suit a user’s hearing.

Welcoming the news Teresa Amat, President EURO-CIU, said “We thank Apple for hearing the demands from EURO-CIU and engineering technology to respond to everyone’s needs. We hope all the industry will follow them and hearing loss and cochlear implants will be more visible than ever.”

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New Zealand doubles the number of people to benefit from Cochlear Implants following successful campaign

Lee Schoushkoff, the Northern Cochlear Implant Programme chief executive and CIICA steering group member welcomed new funding announced by the Health Minister, Andrew Little. The number of adults getting cochlear implants for hearing loss will almost double, thanks to a big funding boost announced as part of Budget 2021.

Andrew Little said that while children are prioritised and rarely have a long wait for an implant, it is important to help adults too. He added that; “Severe or profound hearing loss has a huge impact on people, affecting their family lives, their social lives and their ability to work.

In our 2020 election manifesto we promised to double the number of cochlear implants the Government funds, and today we are moving to deliver on that. The Wellbeing Budget 2021 increase means that 320 more people will get implants by 2025. For these people, this will be life-changing, meaning they can work and socialise more easily and, most importantly, engage with their whānau and friends.”

Welcoming the move Northern Cochlear Implant Programme chief executive Lee Schoushkoff says the annual funding increase will help to ensure the waiting list doesn’t continue to increase beyond demand while providing certainty to hundreds of New Zealanders who have waited years for a cochlear implant – without any guarantee, they would receive one. “We are extremely relieved that the Government has listened to our calls for action, and prioritised adult cochlear implant funding,” says Lee. “Until today’s announcement, many on the waiting list faced the prospect of never hearing again. They now have an opportunity to not only have their hearing restored but to re-enter the workforce and excel in their chosen fields. For others, it means hearing their children and families again, participating in society and leaving a life of isolation. Their lives no longer remain on hold.”

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CIICA LIVE in MAY: The World Report on Hearing and CI Advocacy

CIICA LIVE in MAY: Our first session of CIICA LIVE with 145 registrants from 30 countries shared information from the World Report on Hearing and its evidence for CI Advocacy. See our speakers ready to go! Sue Archbold, Qais Khan, Leo De Raeve, Catherine Birman, Brian Lamb, Beatrice Cusmai, Paige Stringer and Eddie Mukaaya. See the programme in our Events page. It also launched our new resources – summaries to help advocacy groups by providing the evidence in an accessible format. Available to download from our Resources section; have a look!

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