CIICA CONVERSATION: TINNITUS TRAJECTORIES WITH CI
This CIICA conversation was led by Robert Mandara (Vice-President, EURO-CIU), with Maggie Whittmore, a late-deafened bilateral CI user in Los Angeles, California and Kelly Assouly a researcher from the Netherlands.
Kelly is a researcher investigating the effect of cochlear implants on tinnitus, who wishes to build a strong tinnitus community that can empower new tinnitus treatment in research and care.
Maggie emailed: Great – I enjoyed the last conversation and would love to help!
We heard if and how your tinnitus changed before and during your CI journey. For example:
If you have or had tinnitus, did it improve, worsen, change or stay the same following implantation?
- If unilaterally implanted, has the un-implanted ear exhibited tinnitus changes?
- How about when your processor(s) is/are turned off?
- Do you have any reasons for why your tinnitus changed if it did?
- Was tinnitus discussed during assessment or after CI?
Robert Mandara showed a really useful way of illustrating changes in tinnitus experience: have a look and find out if you are a Tom, Dick or Harry – or a lucky Linda! Kelly Assouly shared up to date research, and Brian Clearly shared his evolving blog. Have a look at the summary of the conversation available here
People really valued being able to share their experiences.
A lot of what has been said resonates with me and my experience.