Moving on with Person-Centred Care in CI Services

Read the summary of this event 

This event on Moving On with Person Centred Care explored experiences from CI users and from clinicians from 8 countries on the challenges of moving on..

Health systems try to make you work in a way that runs completely contrary to the person‑centred care approach

The lively wide ranging conversation explored many issues – and listening and information was key:

We need to provide access to information and services that isn’t intimidating, this is why responsible fb groups, peer groups are so effective in providing appropriate information and allowing patients to “raise” their voices.

The Conversation included discussion about how to make CI users person centred for children and young people:

How instrumental are parents in ensuring that the process is patient-centred for children?

 It was felt that being able to advocate for one’s own care was important for young people to learn to be responsible from an early age:

Because I think if we can instil in young people with CI at a very early-stage that they can be proud of their cochlear implant, they should not be ashamed of it, they can advocate for themselves, they can ask for things and be listened to and they’ll carry that through their lives. 

Our Conversations have explored “reimagining rehab” and the value of person-centered care  in CI services – issues also raised when discussing the Living Guidelines project for adults. Where do we go from here? You can see the previous summary available here

The recently published  Living Guidelines did highlight PCC  however, like most of healthcare research, “the patient’s voice is usually missing.” Our conversations are an opportunity for “CI voices” to  contribute this kind of input, specifically what PCC means/looks like/feels like re: information sharing, decision making, and ongoing rehab.

Kris English (left), PhD, is a professor emeritus at the School of Speech-Language Pathology and Audiology at the University of Akron in Akron, Ohio. Her specialty areas are counseling and pediatrics. She is a past president of the American Academy of Audiology.

Helen Cullington (middle) is a Professor and audiologist at the University of Southampton Auditory Implant Service in the United Kingdom; where they  implant adults and children of all ages. Helen is captivated by cochlear implants and the use of technology to improve people’s lives. She has worked for 28 years in six cochlear implant centres around the world, and completed her PhD at University of California, Irvine. she is  past Chair of the British Cochlear Implant Group

Lori Sammartino (right) is a retired elementary school teacher  in the USA turned life coach who received her cochlear implant in Nov 2020 after having experienced a virus that left her with sudden sensory neural hearing loss resulting in single-sided deafness. Since then, she’s discovered a passion for helping others through the emotional side of hearing loss, especially those who’ve faced sudden unexpected loss, because she knows first-hand the challenges of navigating and advocating for what’s needed to return to flourishing.