Advocacy Resources
An initial selection of resources, also available on our open resources page, to help our members in advocacy work. We look forward to adding more. Please send suggestions of resources you find useful.
HUMELAN’S KNOWLEDGE HUB
Humelan provides a great on line resource for those living with hearing loss and their families. Developed by Michal Luntz, ENT surgeon and CI user, and her daughter, Gil Kaminski, it is grounded in person-centred care.
COCHLEAR IMPLANTS FOR DEAF CHILDREN
Not all children who could benefit have the access to CI or the support to fully benefit from their improved hearing. This new Information resource from CIICA and EUROCIU provides up to date information about the impact of deafness for deaf children and their families, and information and evidence about cochlear implantation in children. Helpful for both families and professionals. Available to download.
MORE RESOURCES FROM THE IDA INSTITUTE
We are delighted to share resources from the IDA Institute and will update it regularly. They have many tools related to Person Centred Care and these are very helpful for those of us interested in advocating for Person Centred CI Services. Look at the great videos too!
CIICA’s summary of The Living Guidelines for Adult CI
The Living Guidelines for Adult CI are designed to address the gap in access to cochlear implantation for adults, and to improve CI services for all adults could benefit. Read about their key messages here, see the full recommendations for the whole process of CI and see our summary to use for your advocacy work.
FROM WHO: NEW SENSORY TOOL KIT
The WHO Vision and Eye Care & Ear and Hearing Care Programmes have the pleasure to announce the publication of the Routine Health Information Systems – Sensory Functions toolkit. The toolkit aims to facilitate the monitoring of both eye and ear care services through a standard set of core facility indicators that guide data collection and reporting. FIND OUT MORE HERE.
BATOD AUDIOLOGY REFRESHERS FOR TEACHERS OF THE DEAF
Amazing Audiology Resources available on line for teachers of the deaf. An project from British Association of Teachers of the Deaf, jointly funded by the WIlliam Demant Foundation working wiht Deaf Kids International and British Society of Audiology. See how to source them here.
LIVING GUIDELINES FOR CI FOR ADULTS
The Living Guidelines Project aims at producing evidence based guidelines for CI in adults, to ensure that those who need CIs get the best possible services. CIICA has had a role in ensuring that the user voice is heard in the development of the guidelines, and held four Conversations where you had your say. DOWNLOAD THE SUMMARY.
Quality Standards for Children, Young People and Adults
With increasing interest in Quality Standards for CI, the British Cochlear Implant Group has revised the current Standards for implantation for children, young people and adults. They are now published and available for your use.
