Community Advocacy News
CIICA - still growing! This is our space for shared news and here are just a few to start us off. People told us that they are keen to share news and information, so we don't "reinvent the wheel!".
We welcome short items here with a link to your site – and we will be providing more space for stories about successful advocacy too. Help us to make this an interesting and exciting space! Please send your brief contribution to info@ciicanet.org . We look forward to hearing from you.
Uganda: Hear His Voice, World Hearing Day, 2022
In Uganda, World Hearing Day 2022 saw Hear His Voice run a great day for their families with their First Ever Listening and Spoken Language conference. The conference was Hybrid - in person and on line - and presented across the cities of E Africa. Eddie Mukaaya tells us about it!21 March 2022Read more
Infant hearing screening comes to Kenya!
Great news from Kenya from Steve Kittur! Funding achieved for infant hearing screening and three weeks into the programme, already they are screening 30 babies a day. This is just the beginning! Read about these families from Steve.17 March 2022Read more
Nordic Declaration on Adult Cochlear Implantation
IMPROVING ACCESS TO COCHLEAR IMPLANTS FOR ADULTS.Only one in ten adults who could benefit receive cochlear implants. Patient organisations in all Nordic countries want to change this and joined forces to formulate a declaration to be used with politicians and other key stakeholders. You may find it helpful thinking about your own region.11 March 2022Read more
News from Aures Foundation, Georgia: working for upgrades of processors
Ekaterine of the Aures Foundation, Georgia, updates us on their advocacy work and what they have been doing to work for upgrades of CI processors.11 March 2022Read more
Progress Report from Barnplantorna, Sweden: Family intervention/hearing rehabilitation
Barnplantorna, the Swedish organisation, surveyed early intervention teams across the Swedish regions. Their report is launched, and tells us that there is a long way to go before national guidelines are established for services for today's children and families.11 March 2022Read more
HLAA: Voice of the Patient Report now available
The Hearing Loss Association of America held an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting. During the meeting, we were able to hear from patients regarding hearing loss symptoms and treatments. The “Voice of the Patient” report is now available online. You will also find the comments we received prior to, during and after the meeting online.13 October 2021Read more
The Columbian President promotes inclusive masks
Professionals, associations and users drove the change about masks and the need for clear masks in Columbia. The President sanctioned the law to promote the use of inclusive masks to improve communications for people with hearing disabilities. Patricia Faletty tells us more.18 August 2021Read more
UK annual CI update: 2020-2021 data now available!
The British Cochlear Implant Group collects data from all CI centres in the UK and publishes this data on their website: www.bcig.org.uk The data from the time of the pandemic is interesting and shows the reduction in numbers receiving implants during this time, but also reveals the number of CI which were achieved in this challenging period.4 August 2021Read more
