Members' Events
In this section you will find information about Member’s events. If you would like to share an event, please send brief information and link to info@ciicanet.org
Dominique Sturz, Patient Advocate Usher Syndrome & Rare Diseases shares some upcoming global events about Usher which are relevant to the CI community and explains why they are important. If you are interested in Usher these will be helpful to you.
CIICA shared the information about HLAA’s Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting in May 2021. During the meeting, we were able to hear from patients regarding hearing loss symptoms and treatments. The “Voice of the Patient” report is now available online.
IFHOH is updating our Advocacy Statement given the recent release of the World Report on Hearing and the Consensus Paper on CI Treatment for Adult Hearing Loss. Do come and join the discussion!