Community Advocacy News
CIICA - still growing! This is our space for shared news and here are just a few to start us off. People told us that they are keen to share news and information, so we don't "reinvent the wheel!".
We welcome short items here with a link to your site – and we will be providing more space for stories about successful advocacy too. Help us to make this an interesting and exciting space! Please send your brief contribution to info@ciicanet.org . We look forward to hearing from you.
Global Foundation for Children with Hearing Loss: CI access in developing countries
Paige Stringer, Founder of the Global Foundation shares Discovery magazine: The Fascinating Science and Miracle of Cochlear Implants: Improving Access in Developing Countries. Paige's organisation works in Bhutan, Mongolia and Vietnam.12 July 2021Read more
AICE, ESPANA, Campaña Comercio Accesible!
Si necesitas leerme los labios... ¡Pídeme que me la ponga! Federación AICE launched the Accessible Commerce to Communication campaign with the following slogan: If you need to read my lips... Ask me to put it on!6 July 2021Read more
PINDROP, New Zealand, at Conference for General Practitioners, GPs
Nic Russell, of PINDROP, New Zealand, tells us of their Road Show and the importance of visiting the annual GP conference to talk about the value of adult CI - so many delegates only thought that CI was for children and not an option for adults.22 June 2021Read more
NORDIC ADULT CI ACTION GROUP ONLINE
The Nordic Adult CI Action Group met online - from Norway, Sweden, Iceland, Finland, Denmark - and shared the evidence from the WHO World Report on Hearing and the CIICA summaries, which will now be translated into the Nordic languages. Asa Skagerstrand presented on person centred care and cohesive care processes for adults with severe and profound hearing loss.18 June 2021Read more
Helen Cullington, Chair of BCIG, UK, wears her badge – ask me about cochlear implants!
Helen Cullington, Chair of British Cochlear Implant Group, UK wears her new badge with pride! "ask me about cochlear implants"! You can get one too - email info@bcig.org.uk and you could wear it too to spread the word.23 May 2021Read more
IFHOH – updating our Advocacy Statement on CI
IFHOH is updating their advocacy statement on CI - join the discussion! The paper is being updated given the recent release of the World Report on Hearing and the Consensus Paper on CI Treatment for Adult Hearing Loss.16 May 2021Read more
The Spanish Government recognises CI users and AICE
After years of work by the AICE Foundation, the Plenary of the Spanish Government Senate approved an Institutional Declaration on the occasion of Cochlear Implant Day that was signed by all parliamentary groups, making CI user groups visible.16 April 2021Read more
HLLA’s Patient-focused meeting with Food and Drug Administration of America
The US Food and Drug Administration (FDA) held a Patient-Focused Drug Development (PFDD) meeting hosted by the Hearing Loss Association of America (HLAA) on May 25,2021. It was a great step forward for real patient engagement!14 April 2021Read more
